Raising Hope for Families Living with LCHAD
LCHAD is rare — funding and research shouldn't be. Join us in funding medical research and providing support to families affected by this life-altering condition.
What is LCHAD?
Most people have never heard of LCHAD.
We hadn't either — until it became part of our everyday life.
LCHAD is a rare genetic metabolic disorder that prevents the body from properly breaking down long-chain fats for energy. This can lead to serious and potentially life-threatening complications, requiring constant medical management and vigilance.
Despite its severity, LCHAD research is significantly underfunded due to the rarity of the condition.
Learn more about LCHAD
Why We Fight
Every child deserves a fighting chance.
When our daughter was diagnosed with LCHAD, our world changed overnight. We learned just how rare — and how serious — this condition is, and how few resources exist for the families navigating it.
RISE was born from that experience. Every dollar raised, every research initiative funded, and every family supported brings us closer to a world where no parent has to face this diagnosis alone.
She is the reason we rise. And we won't stop until every LCHAD family has the support and hope they deserve.
~2,000
cases
50
States with Newborn Screening
$0
Public Research Funding
100%
Privately Funded Progress
Make a Difference
Your Support Changes Lives
Nearly all research and medical advancement in the LCHAD space depends on private funding. Every dollar directly impacts families navigating this rare condition. Progress depends on you.
Make a Donation